Abstract:

Background: It has been established that the challenges faced by children with cerebral palsy bring about a higher level of stress which has negative effect on their physical health as well as their social well-being. The aim of this study was to explore the psychosocial problems encountered by the parents caring for children with cerebral palsy (CP) in an urban setting.

Methods: Qualitative research design using focus group discussion (FGD) was used for the study.

The setting was a focus group discussion (FGD) at Obafemi Awolowo University Teaching Hospitals Complex, Ile-Ife, South-West, Nigeria. A total of ten parents participated in the focus group discussion. The parents caring for the children with cerebral palsy coming for treatment in the physiotherapy outpatient clinic of the department were contacted and the nature of the study was explained to them. The main outcome measured were the psychosocial problems encountered by the parents caring for children with cerebral palsy.

Results: The outcome of the study revealed that problems like finance, health-related problems, impaired social relationships, worries concerning child’s future and requirement for more support were encountered by the parents of these children. Most of the parents had visited different traditional, spiritual homes as well as health care facilities for solution to their children’s problems.

Conclusions. Parents caring for children with cerebral palsy encountered varieties of psychosocial problems. Family centered care program can be designed for cerebral palsy children and their parents based on information that may be obtained from research studies of this nature.

Keywords: Psychosocial problems, cerebral Palsy, Parents, Care, Children.

References:

[1].     Alaee N, Shahboulaghi FM, Khankeh H and Kermanshahi SM (2015). Psychosocial Challenges for the Parents of Children with Cerebral Palsy: A Qualitative Study. Journal of Child and Family Studies.

[2].     Cheshire A, Barlow JH and Powell LA (2010). The Psychosocial Well-being of Parents of Children with Cerebral Palsy: A Comparative Study. Disability and Rehabilitation, 32(20), 1673-1677.

[2].El-Tallawy HN, Farghaly MA, Shehata GA, Rageh TA, Metwally NA, Badry R, Sayed AM, Abd El Brehaut JC, Kohen DE and Rainad P (2004) “The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers?” Pediatrics, 114, (2), e182–e191.

[3].     Donald KA, Kakooza AM, Wammanda RD, Mallewa M, Samia P, Babakir H, Bearden D, Majnemer A, Fehlings D, Shevell M, Chugani H and Wilmshurst JM (2015).

[4].     Davis E, Shelly A, Waters E, Boyd R, Cook K and Davern M (2010). “The impact of caring for a child with cerebral palsy: quality of life for mothers and fathers,” Child: Care, Health and Development, 36 (1), 63–73.

[5].     Dambi, JM, Jelsma J & Mlambo T (2015). Caring for a child with Cerebral Palsy: The experience of Zimbabwean mothers, African Journal of Disability 4(1), Art. #168. http://dx.doi.org/10.4102/ajod.v4i1.168.

[6].     Gulam K, Hayley S, Johurul I, Monzurul A, Jenny J, Iona N, Robert B, Cheryl J, Nadia B and Mohammad M (2015). Bangladesh Cerebral Palsy Register (BCPR): a pilot study to develop a national cerebral palsy (CP) register with surveillance of children for CP. BMC Neurol, 15, 173.

[7].     Gallagher S, Phillips AC, Oliver C and Carroll D (2008). “Predictors of psychological morbidity in parents of children with intellectual disabilities,” Journal of Pediatric Psychology, 33, (10), 1129–1136.

[8].     Hamed M, Abd-Elwarth A, Kandil MR (2014). Cerebral palsy in Al-Quseir City, Egypt: prevalence, subtypes, and risk factors. Neuropsychiatric Disease and Treatment, 10, 1267-1272.

[9].     Hodapp MR (1998). Advancing Finding, Theories, and Methods Concerning Children with Disabilities. Athens: Cambridge University Press.

[10].  Marrón, EM, Redolar-Ripoll D, Boixadós M, Nieto R, Guillamón N, Hernández E (2013). Burden on caregivers of children with cerebral palsy: Predictors and related factors. Universitas Psychologica, 12(3), 767-777.

[11].  Majnemer A, Shevell M, Law M, Poulin C and Rosenbaum P (2012). Indicators of distress in families of children with cerebral palsy. Disabil Rehabil, 34(14), 1202-1207.

[12].  Neely-Barnes SL, Graff JC, Roberts RJ, Hall HR and Hankins JS (2010). “‘It’s our job’: qualitative study of family responses to ableism,” Intellectual and Developmental Disabilities, 48(4), 245–258.

[13].  Nimbalkar S, Raithatha S, Shah R, Panchal DA (2014). A Qualitative Study of Psychosocial Problems among Parents of Children with Cerebral Palsy Attending Two Tertiary Care Hospitals in Western India. ISRN Family Med, doi: 10.1155/2014/769619.

[14].  Ozmen M, Caliskan M, Apak S, Gokcay G (1993). 8-Year clinical experience in cerebral palsy. J Trop Pediatr, 39, 52–54.

[15].  Olawale OA, Deih A N and Yaadar RK (2013). Psychological impact of cerebral palsy on families: The African perspective. J Neurosci Rural Pract. 4(2): 159–163.

[16].  Scientific Software Development, “Atlasti the knowledge work-bench,” Berlin, Germany, http://www.atlasti.com/.

[16].Pediatric Cerebral Palsy in Africa: Where Are We? J Child Neurol, 30(8), 963-971.

[17].  Sajedi F, Alizad V, Malekkhosravi G, Karimlou M and Vameghi R (2010). “Depression in mothers of children with cerebral palsy and its relation to severity and type of cerebral palsy,” Acta Medica Iranica, 48(4), 250–254.

[18].  Singogo C, Mweshi M and Rhoda A (2015). Challenges experienced by mothers caring for children with cerebral palsy in Zambia. South African Journal of Physiotherapy. 71(1).

[19].  Thanou E, Tsiou C, Kattami C, Chrousos GP & Darviri C (2016). A Stress Management and Health Promotion Intervention for Parents of Children with Cerebral Palsy and Motor Disability at the Infant Department of the Greek Center for the Protection and Rehabilitation of the Disabled (ELEPAP). Quasi-Experimental Study. Psychology, 7, 557-564.