The Role of Social Workers in the Care of Autism: A Systematic Literature Review

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DOI: 10.21522/TIJPH.2013.10.03.Art019

Authors : Oluwayemisi Abiodun Olaitan, Olusola Abiola Olaitan

Abstract:

The Social Work profession is a caring professional whose primary mission is to assist in meeting the basic needs of individuals, families, and communities, especially the vulnerable, the oppressed, and other key populations, through different forms of empowerment. Included in these groups are persons with autism spectrum disorder, whose care involves various professionals. The role of professionals like psychiatric doctors and nurses, psychologists, behavioral therapists, and occupational therapists are well defined but the role of social workers, who are presumably the first contact with autistic people, is not yet clearly defined. This study explores the opinions of various scholars on the roles of social workers in the care of autism spectrum disorder with the aim of systematizing these different opinions, thereby delineating the professional responsibilities of social workers in the care of autism. The method used in this study is the systematic literature review of journal articles, books, and conference presentations whose main discussions concern the roles of social workers in the care of persons with autism. The review shows that social workers do have a significant role to play in the care of autism, even though the community of health professionals and the caregivers of persons with autism are not aware of the full scope of the role of social workers in the care of autism. The study recommends that this gap needs to be bridged with increased awareness and sensitization. Also, social work educators need to include the care of persons with disability in the social work curriculum in the various training institutions.

Keywords: Autism, Care, Role, Social Workers.

References:

[1] International Federation of Social Workers (2005) ‘Definition of Social Work. Available online at: https://www.ifsw.org/en/f38000138.html (accessed 20 June 2022).

[2] Hare, I. (2004). Defining social work for the 21st century: The International Federation of Social Workers’ revised definition of social work. International social work, 47(3), 407-424.

[3] Karns, H. A. (2017) “To Know That We Are Not Alone”: Social Work with Parents of Children with Autistic Spectrum Disorder.

[4] Iannuzzi, D., Kopecky, K., Broder-Fingert, S., & Connors, S. L. (2015). Addressing the needs of individuals with autism: Role of hospital-based social workers in implementation of a patient-centered care plan. Health & social work, 40(3), 245-248.

[5] Kondrat, M. E. (2013). Person-in-environment. In Encyclopedia of social work.

[6] Baker, D. L. (2011). The politics of neurodiversity: Why public policy matters. Boulder, CO: Lynne Rienner Publishers.

[7] Kapp, S. K., Gillespie-Lynch, K., Sherman, L. E., & Hutman, T. (2013). Deficit, difference, or both? Autism and neurodiversity. Developmental psychology, 49(1), 59.

[8] Krcek, T. E. (2013). Deconstructing disability and neurodiversity: Controversial issues for autism and implications for social work. Journal of Progressive Human Services, 24(1), 4-22.

[9] Jolynn L. Haney (2016). “Representations of Autism in The Social Work Literature from 1970 to 2013: A Critical Content Analysis”.

[10] Harzing, A. W. K., & Van der Wal, R. (2008). Google Scholar as a new source for citation analysis. Ethics in science and environmental politics, 8(1), 61-73.

[11] Shamseer, L., Moher, D., Clarke, M., Ghersi, D., Liberati, A., Petticrew, M., et al. (2015). Preferred Reporting Items for Systematic Review and Meta-Analysis Protocols (PRISMA-P) 2015: elaboration and explanation. BMJ, 349, g7647. https://doi.org/10.1136/bmj.g7647.

[12] Qureshi, M. I., Khan, N., Hassan Gillani, S. M. A., & Raza, H. (2020). A Systematic Review of Past Decade of Mobile Learning: What we Learned and Where to Go. International Journal of Interactive Mobile Technologies (iJIM), 14(06), pp. 67–81. https://doi.org/10.3991/ijim.v14i06.13479.

[13] Woods, R. (2017). Exploring how the social model of disability can be re-invigorated for autism: in response to Jonathan Levitt. Disability & Society, 32(7), 1090-1095.

[14] Ashcroft, R., McMillan, C., Ambrose-Miller, W., McKee, R., & Brown, J. B. (2018). The emerging role of social work in primary health care: a survey of social workers in Ontario family health teams. Health &                 Social Work, 43(2), 109-117.

[15] Bonnefil, M. (1976). Crisis and diagnosis: Infantile autism. Clinical Social Work Journal, 4(4), 276-288.

[16] Lindsay, S., Tétrault, S., Desmaris, C., King, G., & Piérart, G. (2014). Social workers as “cultural brokers” in providing culturally sensitive care to immigrant families raising a child with a physical disability. Health & Social Work, 39(2), e10-e20.

[17] Mary, N. L. (1998). Social work and the support model of services for people with developmental disabilities. Journal of Social Work Education, 34(2), 247-260.

[18] Strunk, J., Leisen, M., & Schubert, C. (2017). Using a multi-disciplinary approach with children diagnosed with autism spectrum disorder. Journal of Inter-Professional Education & Practice, 8, 60-68. Retrieved from http://www.jieponline.com.

[19] Hofstede, G. (2009). Geert Hofstede cultural dimensions.

[20] Widener University online. 5 responsibilities of a social worker. Retrieved from https://www.socialworkonline.widener.edu/msw/resource/top-5-responsibilities-of-a-social-worker.

[21] Rueda, H. A., J Bolin, S., Linton, K. F., Williams, L. R., & Pesta, E. (2017). Social workers’ roles in supporting the sexual and relational health of children with disabilities. Child and Adolescent Social Work Journal, 34(5), 493-505.

[22] Marsh, J. C. (2005). Social justice: Social work’s organizing value. Social Work, 50(4), 293-295.

[23] Nwachukwu, P. T. T., & Asuelime, R. A. (2020). Social justice advocacy implementation in rural settings. Gender & Behaviour, 18(1).

[24] Dalrymple, J., & Boylan, J. (2013). Effective advocacy in social work. Sage.

[25] Shuai Zhu (2018). The Role of Social Work in The Care of Autistic Children’s Caregivers. International Journal of Science Vol.5 No.7 2018. ISSN: 1813-4890.

[26] Alison Bloomer (2021). “Social work and autism: are you getting the support you need?” Published in Learning Disability.

[27] National Association of Social Workers, (NASW), (2008). Code of Ethics of the national association of social workers. Retrieved 02 July 2022 from https://www.socialworkers.org/pubs/code/code.asp.

[28] Meekosha, H., & Dowse, L. (2007). Integrating critical disability studies into social work education and practice: An Australian perspective. Practice, 19(3), 169-183.

[29] Frank-Briggs, A. I. (2012). Autism in children: clinical features, management, and challenges. Nigerian Health Journal, 12(2), 27-30.

[30] Kirst-Ashman, K., & Hull, G. (2015). Generalist Practice with Organizations and Communities. Stamford, CT, USA: Cengage Learning.

[31] Vivien Kwan & Johnson Chun-Sing Cheung (2016): Social Work Initiatives for the Inclusion of Students with Special Educational Needs, Practice, DOI: 10.1080/09503153.2016.1211260 Retrieved from http://dx.doi.org/10.1080/09503153.2016.1211260 ISSN: 0950-3153.

[32] Casey, L. B., & Elswick, S. E. (2011). The social worker’s role in the assessment of autism spectrum disorder. Children & Schools, 33(3), 176.

[33] Avery, K., van Rhijn, T., & Maich, K. (2022). Understanding the Role of Formal and Informal Support Resources for Parents of Children with Autism Spectrum Disorder. Canadian Journal of Family and Youth/Le Journal Canadien de Famille et de la Jeunesse, 14(3), 32-51. Retrieved from http://ejournals,library,ualberta.ca/index/php/cjfy.

[34] Hai, N. T., & Anh, N. P. Problems Faced by Families of Children with Autism–Implications for Social work       Services.

[35] Robertson, J., Hatton, C., Wells, E., Collins, M., Langer, S., Welch, V., et al. (2011). The impacts of short break provision on families with a disabled child: An international literature review. Health and Social Care in the Community, 19, 337-371.

[36] Thuong, N. H., Van Tu, K., & Van Hieu, N. (2021). Factors Affecting the Consultation Skills of Social Workers When Supporting Autistic Children’s Families: Evidence in Vietnam. Revista de Investigaciones Universidad del Quindío, 33(1), 73-80.

[37] Mavole, J., Mutisya, M., & Wambulwa, P. (2017). The role of social workers in education for children with special needs in Nairobi City County, Kenya. Journal of Research Innovation and Implications in Education, 1(3), 39-53.

[38] Kebede, W., Dlamini, C., Drolet, J., & Nicholas, D. (2021). The Role of Social Work in Advancing Capacity in Autism Spectrum Disorder in the Kingdom of Eswatini. Southern African Journal of Social Work and Social Development, 33(3), 19-pages.

[39] Foster, M. V. (2015). School Social Workers’ Role in Supporting Parents of a Child with Autism.

[40] Wassie Kebede, Clement Dlamini, Julie Drolet, & David Nicholas (2022). The Role of Social Work in Advancing Capacity in Autism Spectrum Disorder in the Kingdom of Eswatini. Southern African Journal of Social Work and Social Development. Volume 33 | Number 3: DOI: 10.25159/2415-5829/7610. Retrieved from https://upjournals.co.za/index.php/SWPR/index.

[41] Morris, R., Muskat, B., & Greenblatt, A. (2018). Working with children with autism and their families: pediatric hospital social worker perceptions of family needs and the role of social work. Social work in health care, 57(7), 483-501.

[42] Sanchack, K. E., & Thomas, C. A. (2016). Autism spectrum disorder: Primary care principles. American family physician, 94(12), 972-979.

[43] Newsome, W. S. (2001). Parental perceptions during periods of transition: Implications for social workers           serving families coping with autism. Journal of Family Social Work, 5(2), 17-31.

[44] Alotaibi, F., & Alrashed, H. (2006). Social Workers’ Understanding of Autistic Spectrum Disorders at Mainstream Schools in Riyadh and Dammam cities, Saudi Arabia: An Exploratory Study.

[45] Preece, D. (2008, November). Effective respite care for families with children with autism spectrum disorders. `In ‘Rain Man Is Among Us’: Contemporary Forms of Support for Autistic Persons. A Systems Approach.