Psychosocial Burden of Mothers’ Care of Children with Autism Attending Federal Neuro-Psychiatric Hospital Yaba Nigeria
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Abstract:
Autism spectrum disorder
(ASD), or simply autism, occupies an extreme position among childhood pathologies
due to its severity, duration, and impact on the family. This descriptive study
assessed the psychosocial burden of care on 60 mothers of children with childhood
autism. The instrument consisted of socio-demographic characteristics, 12-item General
Health Questionnaire (GHQ-12), and the Zarit Caregiver Burden Interview (ZCGI).
Data were analyzed using SPSS version 23. Results indicated a significantly high
level of psychological distress (51.8%) among mother of children with autism, and
(30%) thirty percent of mothers of children with autism had a low burden. Bivariate
analysis revealed factors that were associated with psychological distress in mother
of these children were the presence of social type of impairments and a high number
of impairment in the child having to cut down or give up work and a high burden
score on these women believed to be a spillover from the care burden. Results also
showed the number of impairments at various periods: 12 months (51.79%), 6-12 months
(30.36%), and less than 6 months are (17.86%). Mothers’ employment rate was cut
down to 51.9%, while 25.9% gave up their job completely. These were significantly
and independently associated with psychological distress. Conclusively, the study
revealed that mothers of children with autism experience significant higher levels
of burden. Hence, an urgent need for the implementation of intervention programmes
to reduce the burden of care among this group of mothers in Nigeria with social
support and governmental assistance and approaches.
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